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Posts Tagged ‘Lady Gaga’

Lady Gaga raises Lupus Awareness on Larry King

Posted by Katina on June 5, 2010 at 3:28 am

This week one of my twitter-friends sent me a link to music-related Lupus story. I was intrigued. Lady Gaga might have Lupus? Say it isn’t so. As anyone with Lupus can tell you, having Lupus sucks. I was very sad to hear that the singer might be battling with the disease. So I clicked the link to Lady Gaga’s interview on Larry King to listen for myself.

Larry gets right to it. Do you have Lupus? Sort-of, maybe, maybe not, no?

According to Lady Gaga, she was tested for lupus, doesn’t show any signs, is “boderline positive, ” but does not have lupus. What does that mean? Lady Gaga doesn’t appear to have Lupus right now, but may or may not develop it later.

The Lupus Foundation of America has used Lady Gaga’s story to education the public about the nature of the disease (read here) and the diagnosis process.

From the LFA blog:

“There are many challenges in confirming whether a person has lupus.  Lupus symptoms can be unclear, can come and go, and can change over time.  It may take months or even years for doctors to piece together evolving symptoms to accurately diagnose lupus.  And the symptoms may be related to another condition entirely. . . The anti-nuclear antibody (ANA) test is used as a screening test for lupus. We know that 95 percent of people with lupus have a positive ANA.  Therefore, if a person has symptoms of systemic lupus but their ANA test is negative, that’s generally regarded as pretty good evidence against lupus being the explanation for the symptoms they are having.

On the other hand, if the ANA test comes back positive, that IS NOT proof of lupus.  The positive ANA is only an indicator; it is not diagnostic. A positive ANA can be found in a number of illnesses and conditions.  In fact, many people may have positive lupus tests-particularly the anti-nuclear antibody test-and yet they do NOT have the disease. . . .”

For me, Lady Gaga’s “Lupus story” is both a cautionary tale about celebrity and a moment of opportunity to see a musician raise public awareness for a disease.

When I was watching the video, my first thought was why is Larry intruding into Lady Gaga’s personal business like that?  Was she ready to bare her health status and her family’s history to the entire world? You only have to Google “Lady Gaga Lupus” to see how this story spread around the Internet. But I don’t know if Lady Gaga was offended since she seemed genuinely concerned that her fans were concerned about her health.

So on the one hand, her celebrity status has effectively given everyone liberty to speculate about her very private health issues.  On the other hand, she seems ok with it and this provides a platform for her name-recognition to provide a spot-light on the issue of lupus.

The whole situation reminds me of when Christina Applegate was diagnosed with breast cancer. She went on to be a breast cancer advocate, sharing deeply personal information to the public in order to raise awareness of the disease (like talking about having a double mastectomy).

It also reminds me of two celebrities that do have lupus and have used their status to raise awareness of the disease. What’s really interesting to me is that they are both male. This stands out, because while Lupus is a disease that can plague both genders and people of all ages, most people who have the disease are women of childbearing age .

The singer Seal is a very visible face of discoid (cutaneous) lupus which is a disease of the skin.

The extensive scarring on Seal’s face shown in the picture above is from the discoid/cutaneous version of the disease.

“Cutaneous refers to the skin, and this form of lupus is limited to the skin. Although there are many types of rashes and lesions (sores) caused by cutaneous lupus, the most common rash is raised, scaly and red, but not itchy. It is commonly known as a discoid rash, because the areas of rash are shaped like disks, or circles . . . Approximately 10 percent of people who have cutaneous lupus will develop systemic lupus. However, it is likely that these people already had systemic lupus, with the skin rash as their main symptom.” Lupus Foundation of America

Rapper Trick Daddy has also recently come forward to talk about his lupus diagnosis. He has systemic lupus (the version Lady Gaga was tested for) which is a potentially more serious version of the disease because it can affect the body’s major organ systems.  The disease is chronic (meaning it is a long-term illness) and an autoimmune disorder that can damage any part of the body (skin, joints, and/or organs inside the body).

The Miami rapper discussed his Lupus diagnosis on a radio show (discussed here on Hip Hop Crunch)

“I went to the doctor, like, 12 years ago. She took all kinds of tests, because I was trying to get rid of what we call dry skin; she did biopsies and blood tests and swab tests. She told me I have lupus.”


Filed under: Lupus

Stop the Video Madness called Russian Roulette & Video Phone

Posted by Katina on November 18, 2009 at 5:37 am

Lately my eyes have been burning and I realized that it is coming from tears caused by viewing two recent music videos. I love music videos, but these two really saddened me. I keep asking myself, is this what young girls are supposed to look up to when they watch music videos?

Fellow blogger and youth activist Yasmin Shiraz (http:/home/katinara/public_html/ recently asked the question – “Rihanna: Where are your pants?” and then opened a discussion about the appropriateness of Rihanna’s new video Russian Roulette.

Rihanna, where are your pants?

Rihanna, where are your pants?

If you haven’t seen Rihanna’s video – take a moment to view it now. It’s an oddly dark video with sexual and violent overtones.

Russian Roulette – Rihanna

Do you think this is appropriate? What is she trying to say? Here is the comment I left on Yasmin’s blog:

Russian Roulette? Seriously? It’s a game of chance played with a gun that has one bullet. As you play, you gamble that you won’t shoot yourself in the head and die. It’s a terrible, terrible, song idea and video concept for a person whose target audience is young adults. Even if she wasn’t just coming out of domestic violence situation, it would still be a terrible, terrible, idea. Stop the madness.

Then I caught Beyonce’s new video with Lady Gaga – Video Phone. What was B thinking? I can only rephrase Yasmin’s question – Why don’t B and Lady Gaga have on any pants? I am too traumatized to break this down properly, but something is terribly wrong when female singers feel that they have to sexualize themselves like this just to sell a record. What is that thing they are doing with the rifles? I don’t know whether to laugh or to cry – or do both. I mean really, why?

Beyonce ft. Lady GaGa Video Phone

I like Beyonce and am really trying not to hate. But all I can say is: “Hot mess. Hot mess. Hot mess.”

Ok. Now that I have got that off my chest, here’s the call to action.

If you are interested learning more about images of women in the media, you should check out these two organizations. The first is Women in Media and News, a media analysis, education and advocacy group. Founder and Executive Director Jennifer Pozner is on the forefront of analyzing women as subjects of media. Her current work is on reality television which bears similar traits to what we see in the music videos discussed above.

The second organization is Black Girls Rock, which I have blogged about before. They are specifically dedicated to counter the hypersexualized images of women in music videos and build the self esteem of young girls.

Please support these two organizations and Yasmin. Maybe, just maybe they can help stop the madness.